Well guys, I think it's time to do a medical update. People know how much I hate talking about medical issues but...if me or anyone else who has what I have will ever get a cure, we have to step up and talk about what is happening.
For information leading up to my diagnosis, ready the post before...
So when I was diagnosed with endo, the doctor kept trying to have me take birth control pills. I tried for a month and in that month I was getting see bad symptoms. It started off with fatigue, dizziness and lead to me not having much of an appetite to not keeping food down.
After that month I went against doctors orders and stopped taking the birth control pills.
I said screw endometriosis and decided to live my life for another few months without seeing any more doctors. At first I thought I was doing a good job when for a couple of months the pain was barely there.
Even though the pain was gone I should have taken into account that it was not normal my periods were heavy flow up to seven days...which was not as normal as I originally thought. Along with heavy/long lasting flows, when I peed while on my period I peed a lot of blood clotty looking things. Some were the size of a dime while others were the size of the palm of my hand.
Another few months went on until 2013. I don't remember the exact date, except I was still in school and finishing off a semester (April ish).
The pain started getting worse months before and I knew it was time to go back and figure this out once and for all...no matter how drained I was mentally. I got an emergency appointment with a top doctor in Montreal...the same building from the doctor who diagnosed me with a torn stomach muscle a few years earlier.
I managed to get the emergency appointment the same day I asked for it. However, I had to miss a class at school for this. (It was nearing exams but I took the risk...as health was more important in the long-run).
I sat in the waiting room for nearly two hours before I was called in to see the doctor.
I went in and sat with him. He went over options for endometriosis that he wants me to try. Including...yup, you got it, birth control (again).
Other options were pregnancy (it works) and surgery...except with the surgery we would have to find a back alternative once the endo was cleared and we did not have one.
We discussed it for over an hour, and he said people with endometriosis usually have something else with it. Like endometriosis is caused by another illness. Some of the ones he brought up were cysts on ovaries, irritable bowel syndrome, over-active bladder and POCS. He said over time we would look further into the cause.
Judging on past: I thought it could have been cysts...or even an over-active bladder like my doctor once told me I had.
I left the room, and went to buy birth control pills. These are stronger then the last ones and I was hoping they would work.
I took them for four days before I had to stop. I became over emotional to a point i was not happy with life. I cried endlessly and it got to a point I wanted to harm myself/possibly end life. And I know sometimes everyone has those feelings here and there, I have too but not to the point where I was physically about to do it.
I got off the pills and it took the whole entire summer for me to recover emotionally from them.
In august (few months off those pills) I started waking up every morning and puking almost instantly. 98% of the time I did not have enough time to walk ten steps to the bathroom. It felt like my body was paralyzed because I was never able to move during the puking episode.
Some days I would make it to the bathroom and helplessly lay on the floor until it ended. Some days it would not happen until an hour after I woke up and was out of the house.
The puke was yellow bile and my insides burned all the time. With the endometriosis, I was taking pain medication along with birth control that irritated my stomach so bad, doctors diagnosed me with stomach ulcers.
I got the medication to treat the ulcers, but was not allowed to use any pain medication, no caffeine, alcohol or acidy type things for over 3 months.
It took two months before the throwing up stopped every morning. And another two months before the burning eventually stopped.
In April I went back to see my regular doctor and told her the endo pain has been less then some other months. Little did I know I just jinxed myself.
The next two months were brutal with the endo pain. April wasn't as bad as May and may wasn't as bad as June. In June I cried myself to sleep for almost two weeks from the stomach pain. It felt like someone was stabbing me and carving a pumpkin inside my stomach all at the same time. Ice packs, heat pads, hot water bottles...even cream, you name it, I tried it...and it did not work.
I barely had the energy to get out of bed. I skated once in those ten days, had an appointment with my nutritionist and the rest of the time I was curled up in bed crying. I took loads of pain killers, over the dose I should have per day by nearly double for almost the full week and they barely helped.
Mid June I saw my family doctor again and she prescribed a blood test, 24 hour urine test and gave me a referral to another doctor. She said we will still check for the endometriosis but she thinks in have something unrelated.
The last day of June came. My anxiety level hit it's max. I had a major anxiety attack where I cried after for four hours. The following day July 1st I woke up throwing up so much and so unexpected I couldn't get out of bed before it happened.
It lasted nearly an hour and I felt paralyzed until I stopped throwing up. I went on with my day but had zero appetite. I ate maybe one full meal throughout the full day. However I did skate and had a very good one to say the least.
For the following days I had the same morning pattern where I woke up and kept throwing up.
Now we are here today...I'm still throwing up every morning, progressing to after some meals too. Barely made it home yesterday before I started puking (became a badass driver 😋)
My chest and ribs have been hurting so much this week I've been taking double doses of pain killers again. I know I most likely have stomach ulcers from them again but I had to take them. Taking short breaths hurt no mind long ones or yawning.
Tomorrow I'm going for my blood test. I will also be doing my 24 hour urine culture (if my pills don't effect it), as well I have a hip xray to go too, as well as having to see a doctor about throwing up all the time.
Will keep you posted ❤️😘
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